Showing posts with label Disability. Show all posts
Showing posts with label Disability. Show all posts

Thursday, April 16, 2009

What is going ON??!!??


Sometimes I wake up and I panic, because something feels deeply, deeply wrong.

I lie there and think about it, trying to pinpoint what exactly it is that's out of place, sometimes I can, sometimes I can't. It's usually pretty subtle, sometimes it's that something I've seen on TV has been mixed into my dreams, changing the way the world is, and I wake knowing that it's wrong.
Other times I wake up knowing - just knowing - that the world is not as it appears to be, that there are things going on beneath that surface that I do not understand and am not privy to. It's a kind of paranoia I guess.
This morning was one of those mornings, I woke up an hour or so ago and sat down to get on with my work and I still don't know what exactly it is that feels so out of place.
It's probably nothing...

Sunday, March 15, 2009

Loathing

Dear S,

I’m sorry, I don’t know what to say to you anymore. I know I’ve been rude to you lately, but sometimes I just don’t want to look at you, I don’t want to talk. The thoughts are all mixed, I can’t make any sense of my life.

You’re better off without me. I’m childish, selfish, paranoid, neurotic, moody, pessimistic and angry. I’m not there for you nearly enough, I don’t visit your house nearly enough, I don’t ask you about your day, I’m vain and attention seeking and self-obsessed. I wait for you to text me so I can ignore it. I think of you as my enemy rather than my boyfriend – I don’t think you’re on my side, I don’t think you’re interested in me, I feel like you’re always more interested in dvds and my computer than you are in me.

I’m not good-looking enough, I think you could do a lot better, and I take your interest in other people as proof of my own inadequacy. I think you’re a bit of a hypocrite, you want monogamy but you’re always checking other people out online, in movies and in real life – to me it’s the same as actually sleeping with them. You’re a lot better looking than me, I get comments all the time, and sometimes I wish you’d cheat on me or tell me to fuck off. I want you to hit me instead of have sex with me, I want you to call me fat, stupid, lazy, selfish and pathetic. I think I gave up on us a long time ago, before we broke up the first time. And in 2008 I guess I gave up on ever being in a relationship with anyone again.

I missed you, but I got used to the idea that I was going to be lonely the rest of my life. I can’t function sexually anymore, I don’t want anyone to ever see me again, and I don’t want to be touched. I can’t get you off anymore, I’m not what you want.

I want to kill myself – I think about it a lot – I don’t want to make it to 30. I imagine hanging myself, setting myself on fire, walking out in front of traffic, overdosing in the bath. Sometimes I actually try it. I’ve started throwing up again. At the UniQ conference in Auckland, while the rest of you went out clubbing, I went to the park and made myself puke out everything I’d eaten that day. I spent a little while crying, and then when I ran out of tears I climbed on the motorway barrier and tried to will myself to jump. What stopped me was not a will to live but fear of pain and the fact that couldn’t ruin someone else’s life that way.

I feel like I’ve boxed myself in, painted myself into a corner – I’ve made sexuality my whole life, stupidly, knowing that it’s something distresses me, that sexual satisfaction is something I can’t ever have because my life situation prevents me – now I’m too old, fat and ugly, I have too many mental health problems, and my body doesn’t work. I wish I was asexual, but the more I want it, and the more my body keeps responding sexually – though never fully – the more sex disgusts me.

I have made myself a laughing stock by being openly bi and polyamorous, people don’t want me and it’s because I’m fat and ugly. The gym won’t change that – neither will dieting – all that happens is that the skin gets looser and the stretch marks get worse. I’m sorry I ever mentioned it to anyone – I’ve probably embarrassed you too. I never want to be seen again, I just want to die. I keep thinking about suicide but I’m scared of getting it wrong and ending up even worse off. I have every intention of doing it before I turn 30. And I don’t want anyone to know what happened – I want to just disappear. No funeral.

It’s hard to look at you because I think you’re beautiful, and you make me look even uglier. When we go anywhere together I think I hear people laughing at me, calling us ‘fatty and skinny.’ I never want you to take my photo again, I want all photos of me erased or burned.

Friday, December 19, 2008

Will you just LISTEN already??


When people learn that I have a mental illness, everything I say tends to be filtered through their existing preconceptions of what the mentally ill can and cannot do.

Let's say I have an argument or an unconventional belief - however well thought out and logical, however long it's taken me to come up with it - it's inevitably seen as a sort of twisted logic, I can't possibly be right. Homosexuality or bisexuality? It's because I'm ill. Polyamory? It's because my illness has distorted or warped my views on love and trust. The right to die? That's my depression talking.

People confuse causation with correlation. My bisexuality doesn't cause my depression and anxiety, neither is it a result of it. Polyamory is not a symptom of mental dysfunction, it's a position I take based on my understandings of human biology and psychology, it simply makes more sense to me than compulsory monogamy. I would change my opinion on it if I found evidence to the contrary. And my stance on the right to end one's own life is something I have come to having witnessed first-hand the misery and despair that failing health often brings. I strongly believe in human dignity, that people should be given the choice to take control of this one last aspect of their lives and that their loved ones should be free to assist them (or not). It’s respect for humanity - not weariness of it - that brings me to this conclusion.

Sure, when I’m deeply depressed I might think of ending my life, and sometimes these depressions last for weeks at a time. But that impulse is coming from a different place than my intellectual stand on the right to die. If I were someone else with the authority to grant permission for Danny’s death, I would refuse it, because I understand that Danny is not capable of making a rational choice at those times.

I think other people’s confusion of causation and correlation with regard to my unconventional thoughts is largely due to their simply not knowing enough about mental illnesses and the people who are affected by them. It’s assumed that my problem with depression and anxiety affects me all the time, people often fail to understand that I have significant periods of lucidity that outlast the periods of depression. In those periods, I have ample time in which to think rationally and clearly, and to reflect on whether my beliefs and understandings are the product of my illness or whether they are actually valid conclusions.

Yes, I probably do have experiences in my life that make me more likely to hold some of the opinions I do and feel the things I feel, who doesn’t? But I get frustrated with people thinking that I am incapable of thinking critically and discerning truth, that I am blind to my own condition and to the thought processes of ‘normal’ people. I think if anything my lapses into illness force me to be more critical, particularly of my own thought processes. I can’t take anything for granted.

I guess the point I’m trying to make here is that you can’t attribute any observable aspect of my being to another, as such, at least not without a fair bit of investigation. My mental illness is not a symptom of my polyamory, bisexuality or beliefs about death, neither does it cause any of these. It is another facet of me, it may have developed alongside some of these ideas and beliefs as a result of quite unrelated circumstances, and perhaps the marginality of my positions on these issues makes me more likely than most to experience mental illness, but you cannot attribute one to the other. Evidence from studies of other individuals and groups with these beliefs and conclusions exist, and they simply don’t support a causative hypothesis.

Monday, November 17, 2008

November 17 2008

Seven years.

I've been a self-admitted out homo for seven years today. And right now, I don't see anything to celebrate in that.

Being honest with myself and others - that was what it was all about. I believed so strongly that truth was the most important thing in life, that honesty was a force to be reckoned with. I thought I would change what 'gay' meant in New Zealand, I would reconcile homosexuality with faith and spirituality. I would prove that it was possible to be both Christian and gay. I guess I was hoping to change Christianity too.

But I couldn't do it, could I? Trying to make sense of the Bible's stance on homosexuality, I could come to no other conclusion but that the Biblical writers didn't know what they were talking about, and that actually, the truth wasn't really so hard to see. The Biblical writers were just bigots, pure and simple.

It didn't stop there though. I found I could not be selective about what I took from the Bible, it was either all inspired or none of it was. I discarded Christianity, and it was one of the most painful things I've ever had to do. I felt robbed of the world I had invested so much of my life in, my whole purpose and meaning. I guess I've been grieving ever since.

Certainly no 'family,' bological or otherwise, has lived up to the love and community I experienced with the Church of Christ. With my spirituality in tatters, I threw myself into the gay community, hoping to find the same sense of belonging. I didn't find it - I was largely ignored because I was neither rich enough or pretty enough.

But I didn't give up on the gay community, again, I sought to reform, to guide, to support and encourage. I became deeply involved in caring for and protecting queer people - I joined the Wellington Gay Helpline, helped with the Newcomers' support group for gay men, campaigned for gay rights with the Civil Union Bill and wrote to newspapers, even contributing regular articles for Deviant, the weekly gay page in the Massey Student newspaper.

Maybe I got so involved in supporting the queer community because I myself was in need of that support. I always seem to be outside the norm, even within the queer community. My committment to honesty has seen me try to find responsible alternatives to the world of nominal monogamy, first looking at open relationships, then polyamory. I've renamed my sexual and gender identity to have more integrity with who I am, from gay to bisexual to queer, and now genderqueer or possibly even transgender. And it seems that my committment to honesty and integrity actually hurts me more than it helps.

I'm lonely. I am so overwhelmingly, desperately lonley that I spent last night, before this anniversary, contemplating suicide, and actually seeking advice on how to go about it. This isn't a new thing either, most of this year I've felt completely alone, utterly hopeless. What good is polyamory if nobody will love you in return? Why be open about your capacity to love multiple people if not even one person will hold your hand?

And this is the great irony of my life. I've constructed my whole abult life around promoting love and letting people be sexual in whatever way is most true for them, and yet I personally hate my romantic and sexual impulses. I want to mutilate my genitals more than what my parents already have by circumcising me, I want to tear at and scar my body to hide the physical scars left by my ambivalence toward food ands exercise, to hide my ugliness. I want to take apill to forever erase my passions, but more tah that I just want to leave the world I can never be part of - I want to just die.

Because this is me, I'm an all or nothing sort of person. If I can't love you, and that person, and that one, then I want to love no one. If nobody wants to have sex with me, I want to be completely invisible and blind, so that I see no one and no one sees me. I either can't stop eating or I don't eat at all.

Why am I talking about this? Why haven't I just swallowed a bottle of bleach or slit my wrists?

Because that's also who I am - I'm scared. I'm not scared of what's on the Other Side, because I no longer believe there is one. Death is just a blessed release, the end, the light going out. But I'm scared of getting it wrong, of failing and ending up crippled or incarcerated. I'm scared of the pain. I wish someone would do this with me, or for me.

I await oblivion.

Tuesday, May 27, 2008

I want to PAY someone to bash my skull in with a crowbar... any takers??

I want to kill myself.

My flatmate has a new boyfriend, who's a head nurse at Welly hospital, and drives up here to see him every week. It's pretty rotten of me to be unhappy that my flatmate's happy, but, well, I am. Also, Hunky, one of the guys I've loved this many years now, has graduated and has a motorbike, so all's looking rosy for him, and his ex, who I also loved, is heading this way for a visit, and he hates me, even though I miss him. Lezzer #1 is torn between the ex-girlfriend and a new girl who's interested, my most recent ex seems to be reconnecting with his family and is happy enough, my other recent ex is engaged to that trollop faux-lesbian of his. The straight guy I have a crush on, and have done for ages, Mister P, ignores me, my own family is getting all close etc, and I can't because I'm just so angry with them, and I'm falling behind majorly at Massey and don't think I can make it up in two weeks... TWO WEEKS!!! That's all that's left of Semester One. I don't think I can handle another semester. I don't think I can handle being alive.

I want to die.

Friday, May 23, 2008

Possibly

Possibly.
We'll have to see.
But you don't know
What's best for me,
You don't know
What's in my head
The dreams that haunt
Me in my bed.
I get scared,
You don't see why
There are feelings
That I hide.
Medicate me,
Numb the pain,
Turn off the lights
Within my brain
Leaving me
In darkness, here
Alone to face
My silent fears.
Leave me to
This 'misery'
Is it wise?
Well,
Possibly.

- DannyR 23/05/08

Monday, April 21, 2008

Remembrance

There is no going back
It's a thing you come to learn,
As much as you might wish it
You know there is no return.
People change, affections fade,
We all move on with our lives,
That once held dear's forgotten -
Feelings swept out with the tide.
We find ourselves bent double
By the burden of the years,
We drag our feet in weariness
But still there come no tears.
For we know to just keep going
Never pausing to reflect,
Grievances we cherish look
Different in retrospect.
No, there is no going back,
All we have is what we feel,
And the bitter recollection that
Some wounds go too deep to heal.

DannyR

Saturday, October 13, 2007

Fair Weather

I really should have guessed,
I'd have thought I would have known,
I said I'd seen it all before -
These symptoms you have shown.
I knew something wasn't right
But I really didn't care,
Too self-involved to spend the time,
Taken with my own affairs.
And now that you're unwell
I'm too ashamed to lend an ear -
What kind of friend am I?
Turning a blind eye,
Walking quickly by,
I pretend I'm unaware.

Friday, March 2, 2007

Sex Without The Visuals: Being blind and gay -- Deviant, CHAFF 2007

Being both blind and gay has given Yvon Provencher of Montreal a somewhat unique perspective on the world.

“One night I went to a club in the Village, and someone who worked there came up to me and said, ‘Do you realize where you are?’ And I said, ‘Yes.’ And he said, ‘You're in a gay bar.’ And I said, ‘I know.’ And he said, ‘So you want to be here?’ And I replied, ‘Yeah.’ Only at that point did the bar employee seem to get it.”

Sex is somewhat mysterious for all blind people, and even more so for people who are gay or lesbian and blind. Blind people are often not told about the mechanics of sex as teenagers, as there is an almost universal perception that people with disabilities are asexual, and as such many blind individuals reach adulthood without ever fully understanding even the basics. It’s not something that’s really spoken about in an informative, responsive way outside of sex-ed classes. When blind people do pipe up the courage and ask, and when even more unusually someone actually takes time to answer their questions, it’s inevitably explained to them as something that won’t happen for them, that exists for ‘normal’ people. But blind people experience the same urges and desires as sighted people, albeit slightly differently.

Imagine the frustration, and then imagine that frustration compounded by not being able even to find out by other means. There certainly isn’t much available Braille erotica out there (yes, I can hear the sniggers…) and a blind person can’t furtively browse the top shelves of the bookstore or newsstand. Blind individuals often have no idea that such things as phone sex lines or massage parlours exist. Add to this an awareness of homophobia, and an exploration of sexual identity becomes even more enigmatic for gay blind people. Coming out is frightening even for sighted gay and lesbian people.

When Robert Feinstein was a senior at college, he wanted to go to a meeting of the gay and lesbian student’s association on campus, but was afraid to ask for directions to where the meetings were taking place, because he feared the responses of fellow students to someone who was both blind and gay. Just as for sighted gay and lesbian people, adolescence and early adulthood often mean trying to hide in heterosexual relationships for blind queer people. Provencher says, ironically, his blind status has protected him from homophobic violence in the past. For years, he wore either a pink triangle or a rainbow symbol on his lapel. ‘Sometimes, there would be tense moments when people would see them and threaten me,’ he says. ‘Then they'd realize I was blind and back off. There's something in our society which says you shouldn't beat up disabled people, so that would put an end to it.’

So how do you do it? Most of us can’t even imagine sexual attraction without sight. ‘Once you turn off the lights,’ says Provencher, ‘there's little difference.’ Attraction exists without sight, sighted people just tend to forget that. The sound of a voice, the significant silences, the sense of proximity to another body, the scents, the idea of seduction or strength… sexual attraction is a many faceted thing. ‘It is different in a way, I guess,’ Provencher concedes. ‘The glance, the smile, there's something very visual about sex. That it's not there can be very disconcerting for some.’

Provencher's blindness does raise some obvious questions though, most specifically: how does a blind man cope among other gay men, who are so notoriously looks-obsessed? ‘Gay men are men. It's about being male. Men seem to be more visually oriented than women. I do have a different perspective and that's partly related to being blind. I'm not so much into physical appearance. But if I were sighted I'm sure I'd look at men for their bodies too. I realized at a certain point that how you look can affect how people interact with you. For me, clothes were just a matter of not being cold. All that colour coordination for me was very complicated. There was something very superficial about it all. After a time, I stopped fighting it as it was going to be there all the time whether I liked it or not.’

Robert Feinstein sees the gay and lesbian community as discriminatory toward blind people. ‘I remember my excitement when my guide dog and I set out for our first gay bar’ he reported in a Montreal magazine in 2000. ‘We got off the subway at Christopher Street, a street in the heart of Greenwich Village. I asked for directions to the bar, but once inside, I realized that this wasn't going to work… the noise level was incredible! I couldn't hear a thing. And because I couldn't see, I had no idea what was going on around me. I was basically rendered deaf and blind because of the noise level. I sat at the bar, and felt worse and worse as time went by. Nobody tried to talk to me. I finally got the courage to tap the person next to me, and to try to strike up a conversation. The guy was polite, but after talking with him a while, he told me he was with someone.

‘I realized that I had no way of knowing who was alone, who was with someone, and what was going on. I went to other bars on subsequent days, but… unfortunately, the same thing happened. I was shown to a seat, and there I stayed. Nobody came over to talk to me. I finally left and vowed I would never try to meet gay people in this way… I was feeling worse about being blind and being gay than I ever had in the past’. He notes a difference in attitudes towards those whose blindness is a complication of HIV and those who have been blind for life: ‘Many people with HIV suffer visual problems but are looked after within the gay community, and yet blind and vision-impaired people who have not become so from medical complications are often made to feel that they do not belong.’

Don’t read this and think it’s all woe and worry, however. This is not an article about disempowering gay and lesbian people who are blind; it’s not about pity or PC. This is about remembering that whether we can see or not, whether we can hear or not, whether we can walk or not, we are all human beings with the same needs, desires, wants, dreams and hopes, whatever our sexual orientation. Blindness holds up a mirror to society, and can teach us much about ourselves that those ‘privileged’ with sight are, ironically, unable to see, such as how we treat each other, what we take for granted, how we can do things in new ways and ultimately what it is to be human. An anonymous quote on BFLAG (Blind Friends of Lesbians and Gays)’s website says: ‘Someone once thanked God for making him blind so that his soul could see. I have come to believe that there is a lot of truth in that.’

DannyR

Science vs Religion

Heart

Heart
I guess I just care too much...